Treatment of Idiopathic Retroperitoneal Fibrosis Without IgG4-Related Disease Presenting With Ureteral Obstruction

This protocol covers the clinical management of idiopathic retroperitoneal fibrosis (RPF) in patients who do not fulfill criteria for IgG4-related disease and who present with ureteral obstruction requiring active intervention.

Idiopathic RPF without IgG4-related disease, complicated by ureteral obstruction. The therapeutic framework used in IgG4-related systemic disease can be extended to idiopathic RPF that does not meet IgG4-RD criteria. Long-term management — including urinary drainage — is frequently required to preserve renal function, although a good outcome is generally expected when the condition is identified and treated.

Initial management addresses urinary obstruction directly through a drainage procedure, followed by a structured course of glucocorticoid therapy. Maintenance treatment is continued beyond the induction phase, as premature discontinuation is associated with relapse.

The full regimen — including sequencing, monitoring criteria, and duration — is in the complete structured protocol below.

Reduction of retroperitoneal plaque confirmed on CT; resolution of ureteral obstruction.

References

DOI: 10.1111/iju.14218
  • The same protocol of glucocorticoid therapy for systemic IgG4RD can apply to idiopathic RPF that does not fulfill the criteria of IgG4RD.
  • Generally, in idiopathic RPF causing ureteral obstruction, a good outcome for renal function is expected, although long-term steroid therapy along with urinary drainage is often required.
  • At first, ureteral obstruction is usually conservatively managed with ureteral stenting or PNS.
  • As aforementioned, the first-line treatment is glucocorticoid therapy, although the protocol is not standardized.
  • After the introduction and subsequent tapering of the glucocorticoid, sufficient maintenance therapy with low-dose glucocorticoid might be necessary, because premature discontinuation is highly associated with relapse of disease, similarly to IgG4RD.
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