Treatment of Multifocal Osseous LCH in Adults When Bisphosphonates, Methotrexate, or Radiation Have Not Achieved Disease Control

This protocol applies to adults presenting with multifocal osseous Langerhans cell histiocytosis — bone-only disease characterised by multiple lytic osseous lesions — in whom initial bone-directed therapy has not achieved the expected treatment goals.

Standard first-line management of multifocal osseous LCH includes bisphosphonates (alendronate, pamidronate, or zoledronate), oral low-dose methotrexate, or hydroxyurea, plus radiation therapy when fewer than three lesions are safely amenable to radiation. This protocol is indicated when that prior therapy has failed to achieve:

When bone-directed therapy has failed to control disease, systemic chemotherapy is the recommended approach. The full protocol specifies the chemotherapy agents and regimen options for this multifocal osseous presentation — the complete sequence is available via the link below.

Response is assessed by FDG-PET–based imaging after 2–3 months of therapy initiation.

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DOI: 10.1182/blood.2021014343

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